Volume VII Issue 3 – 2012

This newsletter is also available in French. Please contact info@teampata.org for information.

Vol VII Issue 3: PATA welcomes new Executive Director

1.      PATA welcomes new Executive Director

2.      2012 Expert Patient clinics announced

3.      Clinic news from ACTS, the Malazi clinic, the Palapye team and Job Shimankana Tabane Hospital

4.      Disclosure to children materials available on the Yezingane Network

1.      PATA welcomes new Executive Director

Dr Daniella Mark has been appointed as PATA’s new Executive Director. Daniella is a neuropsychologist with a special interest in public health and has spent the last eight years working at the Desmond Tutu HIV/AIDS Foundation. She trained at the University of Cape Town and Groote Schuur Hospital and her PhD thesis was titled ‘Predicting adherence to antiretroviral therapy: Effects of HIV-associated cognitive dysfunction and biopsychosocial status’.

In 2009 she co-founded an NPO called the Sisanda FunDaytion (www.sisanda.org.za) which focuses on bringing joy to underprivileged children.  Daniella is not a newcomer to the PATA network – she presented at the 5th PATA Forum on the topic of adolescent peer educators. We wish her well in her new role and look forward to PATA growing from strength to strength with Daniella at the helm. Daniella can be contacted on daniella@teampata.org.

2.      2012 New Expert Patient clinics announced

PATA’s Expert Patient programme grows every year and in 2012 a total of 48 clinics have been accepted on to the programme. These clinics will receive funding (provided by One to One Children’s Fund) from the 1st of April this year until 31 March 2013.

Together these 48 clinics care for 21697 children, 13525 adolescents and 3380 infants.  Clinics that are new to the programme are Hope of Life (DRC), Kabarondo (Rwanda), Baylor (Tanzania), Kabale (Uganda), TASO Masindi (Uganda) and Mpilo (Zimbabwe). The clinics are spread around Africa, with eight based in Francophone countries, 14 in East Africa and 26 in Southern Africa.

Clinics will receive payments in quarterly tranches starting in April 2012 and need to confirm receipt of payment. The Expert Patient handbook (available on www.teampata.org) will guide Expert Patients and their supervisors in implementing the programme effectively.

3.      Clinic news flashes: Film-making at ACTS clinic; new clinic from Malawi added to PATA network; staff training at Palapye; and radio broadcasting at Job Shimankana Tabane Hospital

ACTS clinic (South Africa)

ACTS clinic recently worked with a volunteer film professional towards an exciting new holiday programme.

“We are pioneering a programme for teenagers who are living with or who are affected by HIV,” says Meghan Dawson from the clinic. “We facilitated a holiday programme for our adolescent clients which involved a film-making workshop. This initiative could develop into film clubs and further projects or internships. The purpose of the workshop was to create ‘I Can’ experiences and to broaden horizons through filmmaking.”

The teenagers worked together – filming, producing and editing – to create a short film called ‘David and Goliath’ over a period of three days. This was then shown to family and friends on the final day during a Hollywood-like premiere event. There are plans for monthly meetings with the crew (they call themselves the Superkidz Film Crew) and partners in the film and media industry. Each participant received a DVD with their completed project.

“This workshop was a great success,” says Meghan. “We owe our thanks to people in the film and media industry who gave their time to share knowledge and skills with the adolescents.”

You can see ‘David and Goliath’, here: http://www.youtube.com/watch?v=edRmpAoUE9A

More about ACTS clinic: www.actsclinic.org .

New clinic: Malazi of St John’s Hospital (Malawi)

Malazi clinic’s treatment team heard about PATA from another Malawian team which attended the 2011 PATA summit in Botswana. The clinic’s vision is reflected in its name – Malazi means “sunrise” in the Tonga language. The clinic runs a teen club for HIV infected adolescents. Malazi cares for 1 180 adult patients on ARVs, 146 children and 103 adolescents.

The main challenges faced by the clinic are the inability to run laboratory tests on children (for lactic acidosis, viral loads etc.), lack of transport to conduct follow-up visits, and knowledge gaps in psychosocial management of adolescents with HIV.

The clinic is proud of its sound networking/referral system with other service providers. An additional success is that they run free CD4 and haemoglobin checks on HIV infected clients.

They are excited about the prospects of working within the PATA network. “We believe the PATA forum is a great opportunity to grow and learn from the experiences of others. We wish to share in the best practices, explore the existing standards and establish a common ground of holistic care to positively impact our children.”

Palapye team (Botswana)

Inspired by the PATA 2011 Forum in Gaborone, the Palapye team aimed to integrate youth services to adolescents aged 13 to 19 years. Management at the clinic approved the task and in-service training for 16 multidisciplinary staff was done in February.

 Job Shimankana Tabane Hospital (South Africa)

Tebogo Tshengiwe from Job Shimankana has told PATA that their paediatric team has secured a slot on the local community radio station Mafisa. This programme will be used to educate the wider community about paediatric HIV/AIDS.

4.      Disclosure to children materials available on the Yezingane Network

The Children’s Rights Centre has established a website and Facebook page which contains plenty of disclosure to children materials. The web address is:

The Yezingane Network is the civil society children’s sector of the South African National AIDS Council. This is an excellent forum for civil society to impact on the epidemic and children’s rights in general. The Children’s Rights Centre started as the Durban Children?s Rights Group in 1988.

Some of the resources available on this network include:

Disclosing to our children: What experience has taught us

WHO Guideline on HIV disclosure counselling for children up to 12 years

The Children’s Treatment Literacy Toolkit Quiz cards

Paediatric Disclosure: Talking to children about HIV

Facilitating HIV Testing and Disclosure with children and adolescents

Healthcare Providers Perspectives on Discussing HIV Status with Children

Helping children live positively with HIV

HIV Positive-A book for Caregivers to help children cope emotionally   

Contributors to this newsletter: Melanie Evans, Virgile Mahoro and Toast Coetzer.

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