Volume VII Issue 5 – 2012

2018-06-13T11:28:38+00:00June 1st, 2012|Newsletters|

This newsletter is also available in French. Please contact anthea@teampata.org.

 Vol VII Issue 5:

 1.      Applications are now open for the 2012 PATA Southern Africa and Nigeria Regional Forum

2.      Reminder: Expert Patient Clinics’ 6 month progress reports due by 31 August 2012

3.      PATA welcomes new Programmes Managers

4.      Meet one of PATA’s new Steering Committee members

5.      Inspiring testimony from a persistent Expert Patient

6.      USA approves over the counter HIV testing – what do you think?

7.      Nigerian team’s successes since the 2011 PATA Pan-African Forum

8.      Spotlight on the One to One Children’s Fund

 1.      Applications are now open for the 2012 PATA Southern Africa and Nigeria Regional Forum

PATA is now accepting applications to attend the 2012 PATA Southern Africa and Nigeria Regional Forum in Cape Town, South Africa from 3-7 December 2012.

There are 20 team spots available and the scholarship process for funding to attend will be extremely competitive. Preference for funding scholarships will be given to new teams and to clinic teams who have stayed in touch with PATA by means of regular progress reports.

Multi-disciplinary teams (each team should consist of a doctor, nurse, counsellor and pharmacist) from Southern African countries (Angola, Botswana, Lesotho, Malawi, Mozambique, Namibia, South Africa, Swaziland, Zambia and Zimbabwe) and Nigeria are eligible to apply.

If you meet the eligibility requirements, please email Fiona at fiona@teampata.org for an application form.

Applications are due Friday 24 August 2012.

2.      Reminder: Expert Patient clinics’ 6 month progress reports are due by 31 August 2012

All Expert Patient Programme Supervisors are reminded to submit their 6-month progress report by the end of August 2012.

Please use the template provided and answer as comprehensively and accurately as possible (reports written by hand should be printed clearly).

Supervisors are also reminded that reports are a requirement in the MOU (memorandum of understanding) signed between PATA and the clinic on the programme. The agreement also stipulates that the October tranche payment will not be released until the report is submitted.

We look forward to receiving all reports. Please contact Fiona at fiona@teampata.org for a copy of the report template or for more information.

3.      PATA welcomes new Programmes Managers

Heleen Soeters and Fiona Mpungu have just joined our team as Programmes Managers at the PATA office.

Heleen has Masters degrees in Neuroscience and International Public Health and will manage PATA’s local forums and our new research portfolio.

Fiona has a Masters degree in International Healthcare Management, Economics and Policy and will manage PATA’s Expert Patient Programme and social media platforms.

They will be an integral part of the 2012 PATA Southern Africa and Nigeria Regional Forum planning team.

We wish both of them the best of luck in their new roles. We also look forward to the contributions they will make to PATA’s growth. Heleen can be contacted at heleen@teampata.org and Fiona at fiona@teampata.org.

4.      Meet Phoebe Ongadi, a new PATA Steering Committee member

PATA is led by a Steering Committee of volunteers – paediatric HIV experts and frontline healthcare workers – located across Africa and across the world. The 13-member committee meets every second month and is responsible for strategic planning, which is then implemented by PATA’s Executive Director, Programmes Managers and the PATA office.

In 2011, PATA’s Steering Committee expanded to include four new members, each representing a professional group within the PATA network (doctors, nurses, pharmacists and counsellors).

Phoebe Ongudi is one of PATA’s new Steering Committee members, representing the nurses professional group. Phoebe coordinates HIV and outreach activities at Sunshine Smiles Clinic in Kenya.

Sunshine Smiles Clinic runs a successful Expert Patient Programme and Phoebe hopes to conduct accredited courses for Expert Patients with the aid of PATA. The clinic has already developed a curriculum to be used by the Expert Patients and is providing on-the-job training.

PATA would like to welcome Phoebe and congratulate her clinic on the work Sunshine Smiles Clinic is doing.

5.      Inspiring Testimony from an Eastern Cape Expert Patient

A persistent Expert Patient can help others by refusing to give up. An Expert Patient from Kareedouw in the Eastern Cape managed to convince a community member who had defaulted to return to treatment and take better care of himself.

This Expert Patient traces HIV-infected patients from his clinic into the community. In this particular success story, he helped a man who had refused treatment for three months to return to the clinic.

“I was always encouraging him to go to the clinic and referred him to the sister in charge,” says the Expert Patient.  “I also gave him healthy food and everything that he needed.”

After determined follow up, the Expert Patient also provided advice, motivation and counselling.

“I’m glad now because he is growing in his body, he has no problems in his life and no stress.  If you are infected and you know how to care for yourself you will never die.  Believe in yourself, always be hopeful and you will survive.”

Congratulations to this Expert Patient and the Kareedouw BJ Vorster Wellness Clinic and Cold Stream Clinic!

6.      USA approves over-the-counter HIV testing – what do you think?

The US Food and Drug Administration (FDA) recently gave the final approval for the OraQuick In-Home HIV Test. This over-the-counter (OTC) test will be sold in pharmacies and via the internet.

The test is performed by using an absorbent pad to swab around the outer gums. Test results are available in twenty minutes.

The premise behind this test is that anyone will be able to do an HIV test without having to go to a clinic or hospital. If this OTC HIV test is positive, the individual will have to confirm it with another test at a clinic or laboratory. There is a great hope that this testing will reduce the number of undiagnosed infections and in turn reduce new infections.

An unanswered question is whether people who test HIV-positive with the OTC test will then engage with the health system for further testing and continued support.

For more information about OTC HIV testing you can use the following link:  http://www.aidsmap.com/page/2421108/?utm_source=NAM-Email-Promotion&utm_medium=aidsmap-news&utm_campaign=aidsmap-news

7.      Nigerian team’s successes since the 2011 PATA Pan-African Forum

The Aminu Kano Teaching Hospital (AKTH) of Kano in Nigeria used the 2011 PATA Pan-African Forum as a catalyst to improve the quality of their paediatric HIV services.

Between January and June 2012, AKTH managed to train 44 multidisciplinary staff on adolescent care. They have also successfully implemented a volunteer programme to improve the tracking of patients lost to follow-up (LTFU). 80% of their LTFU patient base has returned to care already.

The team has incorporated an adolescent care meeting into an existent PMTCT meeting and finalized requirements to form an adolescent support group.

Other achievements include getting management on board with the team grid objectives, confirming support from the Chief Medical Director and senior management members of a PEPFAR-supported HIV clinic within the hospital and creating a PATA sub-committee as part of a PMTCT/ paediatric HIV committee.

AKTH have also gotten religious leaders involved to gain community acceptance and support.

Congratulations to AKTH on their progress and may they continue the good work!

8.      Spotlight on: One to One Children’s Fund

One to One Children’s Fund provides integral funding and capacity-building support to PATA’s expanding network of clinics. It also co-manages the Expert Patient Programme with PATA.

One to One Children’s Fund helped to rebuild the lives of over 100 000 children during 2011 by implementing programmes in Kosovo, the Middle East and sub-Saharan Africa. Their programmes aim to fill crucial gaps in services to improve children’s lives by focusing on HIV/AIDS, trauma and education.

In addition to the great work they do with PATA and the Expert Patient Programme across Africa, the One to One ART Support Programme in the Eastern Cape province (South Africa) provides outreach care to 3 500 children on ART.

They also implemented ‘Play Football for Life’ with Whizzkids United in Rustenburg (South Africa), bringing essential life skills and HIV education to 2 800 school children last year.

Sharon Jackson, One to One Children’s Fund’s Executive Director, says that they “passionately” believe in the work of the PATA network and the Expert Patient Programme. “We know that these are two of the most effective ways to save and enhance the lives of thousands of children,” she says. “The PATA network is unique in the way it works through the existing clinics’ structure, rather than creating parallel systems, and fosters an environment for treatment teams across Africa to establish and share best practice. Expert Patients are proving ever more valuable as part of those treatment teams.”

PATA would like to thank One to One Children’s Fund for their invaluable contribution. For more information, visit www.onetoonechildrensfund.org.

Contributors to this newsletter: Daniella Mark, Fiona Mpungu, Virgile Mahoro and Toast Coetzer.