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PATA 2012 Southern Africa and Nigeria Regional Forum update
Spotlight on the Diana, Princess of Wales Memorial Fund
WHO Young People Living with HIV Survey
eLearning Modules for WHO Pain Guidelines for children and adolescents
PATA is on Facebook and Twitter!
Expert Patient Programme update
Welcome to new PATA teams
Kamuzu Central Hospital (Malawi) Team Grid accomplishments
Updated ARV Dosing Chart for Children and Adolescents
Clinic success stories following the PATA 2011 Continental Summit
1. PATA 2012 Southern Africa and Nigeria Regional Forum update
The countdown has begun to the PATA 2012 Southern Africa and Nigeria Regional Forum. We are delighted to announce that the Protea Hotel Fire & Ice, situated in the city bowl of Cape Town, will be our official conference and accommodation residence. Nestled in the heart of the Mother City, this vibrant hotel boasts superb accommodation and advanced conferencing facilities.
We hope to plan an evening out in Cape Town so that our delegates can experience a glimpse of this beautiful city.
The PATA Forum co-host organisations are all from Zimbabwe: MildMay International, Newlands Clinic and Mpilo OI Clinic.
The travellers tip for this month: What to pack – if you are attending the Forum, remember to pack light clothing, comfortable shoes, and a universal adaptor (South Africa uses 3 round-point wall plugs).
We are overjoyed about the interest from the PATA network and new teams. We are reviewing all applications and will announce the 20 teams who will participate in this Forum shortly.
2. Spotlight on the Diana, Princess of Wales Memorial Fund
The Diana, Princess of Wales Memorial Fund (‘the Fund’) will sadly be closing at the end of 2012. We at PATA would like to express our gratitude for the support we have received from the Fund and the work we have been able to do with its support.
With the aid of the Fund, PATA was able to plan two Local Forums on palliative care in Malawi for 2012 and a palliative care Masterclass which took place at the PATA 2011 Continental Summit in Botswana.
The overwhelming response to these activities led the Fund to support two further palliative care Local Forums in Tanzania and Swaziland this year. A palliative care needs analysis will also be conducted at the PATA 2012 Southern Africa and Nigeria Regional Forum.
Significant value has been added to PATA’s work and the Diana, Princess of Wales Memorial Fund legacy will continue through the work of the PATA clinic teams. For more information on the Fund please visit their website http://www.theworkcontinues.org/.
3. WHO Young People Living with HIV Survey
The World Health Organization (WHO) is developing guidelines on HIV care for adolescents living with HIV. To make sure the voices of the young people (ages 10-24 years) are heard, WHO has developed a survey to gain insight into their needs and opinions regarding their health care.
If you have young people involved at your clinic, please ask them to complete the survey, which is available at the link below. Every voice and opinion matters!
All PATA network clinics are encouraged to share this information with any individuals or organizations who would be interested in completing the survey.
The survey is available here: https://www.surveymonkey.com/s/YPLHIVneedswants
4. eLearning Modules for WHO Pain Guidelines
The WHO guidelines on persisting pain in children with medical illnesses are available on the International Children’s Palliative Care Network (ICPN) website. These guidelines focus on the treatment of pain through medication.
The guidelines have recently been updated, replacing previous guidelines. It consists of four publications and four eLearning modules (short courses) – these are available to all who need training on children’s palliative care.
For more information on the WHO guidelines on persisting pain visit this website:
To access the eLearning modules visit: http://www.icpcn.org.uk/page.asp?section=000100010043§ionTitle=ICPCN%27s+new+elearning+programme
5. PATA is on Facebook and Twitter!
Join us on Facebook by ‘liking’ the Paediatric AIDS Treatment for Africa page. On the page you’ll find Forum photographs, relevant Forum updates and other news from TeamPATA’s Cape Town offices. Go to http://www.facebook.com/pages/Paediatric-AIDS-Treatment-for-Africa/139717556103611 to join PATA on Facebook.
Follow us on Twitter for regular updates, tips and weekly paediatric HIV news articles. Go to www.twitter.com and search for @teampata to follow us.
We look forward to ‘meeting’ you on Facebook and Twitter!
6. Expert Patient Programme update
The Expert Patient Programme (EPP) involves caregivers of children living with HIV and People Living with HIV (PLHIV) in task-shifting and community outreach activities.
PATA, in partnership with the One to One Children’s Fund, currently supports 190 Expert Patients in 48 clinics in 13 countries across sub-Saharan Africa. Thank you to all Expert Patient Supervisors who have submitted their 6 month reports.
Here are two highlights from these reports:
“The EPs have been very helpful with their home visits on one of the cases which was always missing dates and had poor adherence and they visited the family that’s when they discovered that the grandmother who was with the children could not read and so did not know when the follow ups were and they identified a neighbour to help with reminding and reading the dates for her.” – Oshikuku Roman Catholic Hospital, Namibia
“The clinic has engaged in a family centred approach of HIV care. This was aimed at increasing the number of children who access HIV testing and counselling hence enrolling all deserving children into HIV care.” – Dvokolwako Health Center, Swaziland
7. Welcome to new PATA network teams
Seven new paediatric HIV teams have joined the PATA network since our last newsletter.
A warm welcome to Centro de Aconselhamento e Testagem Voluntária do Sumbe and Centro Elavoko from Angola; Malazi Clinic, St John Hospital from Malawi; Paediatric ART Clinic, Gombe and Paediatric ART Clinic ABUTH, Zaria from Nigeria; Ndeke Clinic from Zambia; and the MatCH-KwaZulu-Natal Department of Health eThekwini District Clinics from South Africa.
8. Kamuzu Central Hospital (Malawi) Team Grid accomplishments
Kamuzu Central Hospital in Malawi has successfully accomplished all of their 3 and 6 month goals set at the PATA 2011 Continental Summit in Botswana!
To improve adherence in adolescents, they have hired a psychologist to assist those with poor adherence. In the first three months since the summit, there has been a 15% improvement in adherence leading to an 87% adherence rate.
Patient waiting time has been reduced from a whole day to two hours. This was accomplished by routing all patients with no complaints and good adherence to a three-person clinic team, while all the other staff treats patients in need of more urgent attention.
Palliative care services have also improved. New forms are filled out for cases where palliative care is recommended. These patients are directed to a dedicated ward. Lab result times are being reduced as the facility begins pilot phase trials with a GSM SMS facility to receive the results.
PATA is very proud of Kamuzu Central Hospital’s accomplishments and encourages all teams to continue working to reach their own goals.
9. Updated ARV Dosing Chart for Children and Adolescents
The Southern African HIV Clinicians Society, in partnership with the South African National Department of Health, has updated the ARV Drug Dosing Chart for Children and Adolescents.
Congratulations to Dr James Nutall, Paediatrician at Red Cross Hospital (Cape Town, South Africa) and a member of the PATA Steering Committee who together with Dr Nonhlanhla Dlamini (Chief Director: Child Health, Department of Health) led this effort.
To view the chart, click on this link:
For more information on the Southern African HIV Clinicians Society visit www.sahivsoc.org.
10. Clinic success stories following the PATA 2011 Continental Summit
Dvokolwako Health Centre (Swaziland) has created a children’s support group that meets once a month on a Saturday. As a result the number of children who have been disclosed to has risen while the number of children who have missed school for treatment has been reduced.
The support group has also helped to create a community for HIV-positive children. The centre has successfully integrated ART services into other departments, facilitated initiation of ART for children under the age of two years and created a central location to collect all medicines.
Kalembelembe Paediatric Hospital (DRC), who treats 1 859 children, has reduced the children lost to follow-up by 50% in the first three months since the PATA 2011 Continental Summit and after six months by over 75%.
Nsambya Home Care (Uganda) has developed transition and disclosure guidelines to help move adolescents into the adult clinic support groups. Up to 265 people attended meetings that focused on these goals. Everyone received a checklist to help guide them to prepare each adolescent for the transition.
Congratulations to all PATA teams on their successes!
Contributors to this newsletter: Daniella Mark, Fiona Mpungu, Glynis Gossman, Michele May, Virgile Mahoro and Toast Coetzer.
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