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Volume VIII Issue 3:

The Rockefeller Foundation recognizes PATA as a top innovator

PATA 2013 East Africa Regional Forum

Expert Patient Programme 2013-2014

Three month reports from Umtha Welanga (South Africa) and Baylor College of Medicine Children’s Foundation (Lesotho)

PATA Child-Friendly Clinic Initiative

Malawi study reveals the benefits of lifelong antiretroviral treatment for expecting mothers

1. The Rockefeller Foundation recognizes PATA as a top innovator

In celebration of their centennial year, The Rockefeller Foundation set out to identify ideas that chart new paths, paths that will transform the lives of billions working in informal economies across the globe.

We are proud to announce that the PATA Expert Patient Programme, in partnership with the One to One Children?s Fund was chosen as one of the world?s top 100 innovations for The Rockefellar Foundation’s Next Century Innovators Awards. According to The Rockefeller Foundation, each of the 100 innovations are ‘solutions to some of the world’s most pressing problems, in exciting and unexpected ways’. Innovators chosen are forging new pathways, changing the way services are delivered, and improving conditions for the world’s most vulnerable populations.

2. PATA 2013 East Africa Regional Forum

PATA Continental Summits, Regional Forums and Local Forums are collaborative meetings of frontline healthcare workers from multidisciplinary paediatric HIV treatment teams. Each team consists of a doctor, nurse, counsellor, pharmacist and Expert Patient, drawn from across the PATA network in 24 sub-Saharan African countries. At each Summit or Forum, paediatric HIV treatment teams come together to learn from world experts and share models of best practice.

The PATA 2013 East Africa Regional Forum will take place in Dar Es Salaam, Tanzania in November 2013. PATA teams from Tanzania, Kenya, Uganda, Rwanda, Burundi and Ethiopia will be eligible to apply to attend this forum. Teams will be exposed to the latest updates on paediatric HIV prevention, treatment and care from leading experts. The forum will follow PATA’s standard format of cutting-edge presentations and a structured series of accompanying workshops. The outcome will be the selection of goals to improve the quality of paediatric care that teams deliver in their home countries.

As part of our preparations, we would like to invite PATA network members to submit topic suggestions for the academic programme. These suggestions can be emailed to Fiona Mpungu at by 30 June 2013.

3. Expert Patient Programme 2013-2014

The PATA Expert Patient Programme, in partnership with One to One Children’s Fund integrates people living with HIV/AIDS into multidisciplinary paediatric HIV treatment teams through employment as ‘Expert Patients’.

Through this programme, the voices of people living with HIV are able to be heard within a clinical context. Vulnerable women and men who are adversely affected by poverty, stigma and limited employment opportunities become valued members of their families (as breadwinners), communities (as role models) and clinics (by assisting overburdened health care workers) through their participation in the programme.

Clinics apply annually to join the programme. This year, PATA received 70 applications, from which the following 49 clinics across 16 countries have been selected for participation in 2013-2014:

Botswana: Baylor Children’s Clinical Centre of Excellence

Cameroon: Centre Médico-Social “Ange & Eva”

Democratic Republic of Congo: CAP Heal Africa and Hopital Pediatrique de Kalembelembe

Ethiopia: ALERT

Kenya: Lumumba Health Centre, Kisumu District Hospital, Rabour Clinic, Sunshine Smiles Clinic, Bungoma Comprehensive Care Centre, Transmara Kilgoris Clinic

Lesotho: Baylor College of Medicine Children’s Foundation

Malawi: Baylor Children’s Foundation, Matawale Health Centre, Mayaka Health Centre, Paediatric Clinic/Zomba Central Hospital, Rainbow Clinic, Tisungane Clinic and Neno District Hospital

Namibia: Andara ART Clinic, ART Clinic St Mary’s Hospital Rehoboth, Nyangana Catholic Hospital and Oshikuku Roman Catholic Hospital

Republic of Congo: Hopital de Base de Tie-Tie

Rwanda: Rwinkwavu Hospital, Butaro Hospital, Kirehe Hospital, Mulindi Health Centre and Kabarondo Health Centre

South Africa: Sundays River Valley, Zwide Clinic, Emporium of  Care -TC Newman, Empilisweni Clinic, Worcester Community Day Centre, Uitenhage Provincial Hospital, IDC Tygerberg and Kidzpositive (Groote Schuur Hospital)

Swaziland: Dvokolwako Health Centre

Tanzania: Baylor College of Medicine Children’s Foundation, Mbeya Referral Hospital CTC and Songea CTC

Uganda: Joint Clinical Research Centre, TASO Gulu, Kabale Regional Referral Hospital HIV Clinic and TASO Masindi

Zambia: Ndeke (Nankambala Urban Clinic)

Zimbabwe: Mpilo OI Clinic, Newlands Clinic and Beatrice Road Infectious Disease Hospital

Congratulations to these clinics!

4. Three month reports from  Umtha Welanga (South Africa) and Baylor College of Medicine Children’s Foundation (Lesotho)

The PATA Forum process culminates in each team creating a PATA Team Grid, detailing 3-, 6- and 12-month quality improvement goals for their healthcare facility.

Three months after the PATA 2012 Southern Africa and Nigeria Regional Forum, Umtha Welanga from South Africa has made good progress on their three month goal to improve their monitoring and evaluation. The team has managed to re-design their data entry forms, develop a data entry system and set up a team to enter the information and ensure that the backlog is also captured.

After researching a variety of data collection systems, the clinic chose Dimagi (Commcare), a cell phone monitoring system. This low-cost system has been used with great success elsewhere in South Africa. Well done to Umtha Welanga on this innovative idea and on their good progress!

Baylor College of Medicine Children’s Foundation in Lesotho’s three month progress report highlighted their achievements towards successful paediatric to adolescent patient transition and reducing patient waiting time at the pharmacy.

            Baylor Lesotho has managed to graduate 70 adolescents from the general paediatric clinic to the adolescent clinic. A young adult support group (18-25 years) has also been created to encourage members to share their challenges and gain support from each other.

            They have also trained a pharmacy assistant and storekeeper to pre-pack medications, refill medicine cabinets and keep cabinets organised. This process has greatly reduced the patient waiting time at pharmacy.

Congratulations to Baylor Lesotho on these achievements!

5. PATA Child-Friendly Initiative

The PATA Child-Friendly Clinic Initiative was launched in March 2013 in order to uplift paediatric HIV clinics across sub-Saharan Africa.

Through the initial round of support, PATA was able to offer small grants to three South African clinics (Govan Mbeki Clinic, TC Newman IDC and Wellness Centre-Isilimela Hospital) to create child-friendly spaces. Grants may be used to improve existing facilities to provide safe and friendly environments for children in HIV care.

A child-friendly environment is a protected space where a child feels both physically and emotionally secure and at ease. It serves as a place where children may participate in activities to play, socialise, learn and build resilience. An environment such as this helps to reduce the fear, anxiety and distress often associated with HIV clinic visits. In having positive associations with clinics, children are more likely to adhere to their ART regimen and return to the clinic for scheduled appointments.

6. HIV in the news:The benefits of lifelong antiretroviral therapy for pregnant women – Malawi study

A recent study conducted in Malawi revealed that if all HIV-positive pregnant women are provided with antiretroviral medication for life, their odds of surviving the next ten years increased four times.

The study describes Option B+, which entails providing antiretroviral therapy to all women who are pregnant and HIV-positive for the rest of their lives. This option protects not only the life of the unborn child, but the lives of future children and the mothers themselves. To read more on this study please click the link below.

Contributors to this newsletter: Fiona Mpungu, Virgile Mahoro, Toast Coetzer and Daniella Mark.

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