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Volume VIII Issue 6:
PATA Local Forum in Zambia
Expert Patients Programme Update
PATA 2013 East Africa Regional Forum Update
Join the HIV Point of Care Community of Practice
1. PATA Local Forum in Zambia
PATA recently hosted a Local Forum in Lusaka (Zambia) focused on the Prevention of Mother-To-Child Transmission (PMTCT). PATA Local Forums have the dual purpose of disseminating accurate information from leading experts in paediatric HIV and to develop a district-focused approach to a comprehensive paediatric HIV/AIDS programme.
This Local Forum included community-based organisations (CBOs) as participants for the first time. The purpose of including CBOs is to ensure a combined effort within and between communities to improve the quality of care offered to paediatric patients and their families.
The following clinics and CBOs teams attended the Local Forum – Estates Clinic and Pride Community Health Organisation, Chilanga Health Centre and Mt Makulu Health Centre and Chilanga Youth Awake, Nangongwe Clinic, Railway Clinic and Rise Community Aid Programme, Chazanga Clinic Centre working, Kabangwe Creative Initiative Association, Lusaka District Community Medical office, Kamwala Health Centre, Kafue District Community Health Office and Elizabeth Glaser Paediatric AIDS Foundation (EGPAF).
Presentation topics at the gathering included ‘Male involvement within the PMTCT programme’, ‘Field experience on CBO collaboration and community engagement to reduce stigma and discrimination’, ‘CBO clinic collaboration for improved PMTCT outcomes – Community mapping as a model’ and ‘Family planning within the PMTCT programme’. Presenters came from a whole range of partner organizations such as EGPAF, World Vision Zambia and FHI 360 Zambia.
Clinic and CBO teams were required to set quality improvement goals at the end of the forum. Teams used information from the plenary presentations, the professional group workshop and the team workshop to generate goals. Some of the goals set by teams were to ‘increase male involvement in PMTCT’ and ‘enhance communication between CBOs and health facilities’.
Well done to all clinics and CBOs teams who participated in this Local Forum. Good luck in achieving your goals!
2. Expert Patient Programme Update
The Expert Patient Programme is a task-shifting initiative developed to assist clinics and the community they serve to improve the quality of care offered to paediatric patients and their families. Expert Patient Supervisors submit a report on Expert Patient activities in their clinics at six months and 12 months.
PATA and One to One Children’s Fund use these reports to monitor the progress of the programme and to develop ways to improve the programme. Here are some excerpts from the six-month reports:
‘I was identified by the ART-clinic team to join the expert patient group. I never thought that I would be able to work again due to my illness and thanks to the availability of treatment I am able to work again. I was promoted to work in the ART-clinic where I assisted the staff with filing, weighing of clients, translation and assistance in adherence counselling as well as taking blood samples to the laboratory. I am glad that I can still learn more each day. I am also involved in the children support group sessions. Being an expert patient has changed my outlook on life in a positive way.’ – Expert Patient, Uganda
‘I am 17 years old and had abandoned ART and my studies because I was convinced that death was near. Thanks to the expert patient who visited me at home I was taught the importance of returning to and following treatment and resuming my studies. I am now in a good clinical condition and I have completed my studies.’ – Patient, Rwanda.
‘During the last three months we have had serious staff shortages in the Paediatric clinic. We employed the services of one of the Play Therapists to help. She doubled as a nursing aide handling the reception, triaging patients, taking measurements, collecting results while at the same time attending to the play area. This she did for two days every week. As a result the shortage was not felt in the clinic and service was smooth.’ – Expert Patient Supervisor, Namibia
3. PATA 2013 East Africa Regional Forum Update
Up to 130 delegates – representing a multidisciplinary team of healthcare professionals including, doctors, nurses, pharmacists, counsellors, expert patients, community healthcare workers, team PATA staff and donor agencies will convene from 12-14 November 2013 in the beautiful coastal city of Dar es Salaam, Tanzania, for the 9th International PATA Forum.
Co-hosted by and jointly presented with local partners Baylor College of Medicine Children’s Foundation Mwanza and Songea CTC, the forum provides an opportunity to take stock of progress, challenges and lessons learnt in meeting the Millennium Development Goals (4, 5 and 6) with regard to the paediatric HIV responses across the East African region. Participants will engage on a range of issues, from nutrition, adolescent sexual and reproductive health to that of malaria and tuberculosis whilst focussing on strategies to ensure universal treatment access.
The academic programme of the PATA 2013 East Africa Regional Forum has been developed to ensure all participants benefit from a range of experienced experts and guest speakers in the HIV field.
The brief outline of the PATA forum process is as follows:
Morning plenary input from guest speakers around a central day theme: Presentations will be geared toward practical application to paediatric care and appeal to a multidisciplinary audience in order to plant seeds and ideas for participants to explore in later workshops. Presentations from guest speakers will include: MDG’s: 2015 and beyond; Nutrition assessment and counselling; Introduction to 2013 WHO Guidelines for Adolescents Living with HIV; An Implementer’s Experience in Building Adolescent-Friendly HIV clinics in Rwanda; Working with most at-risk adolescents: Our challenges and our responsibilities; ART access and TB in children simplified.
Workshop 1, in professional groups: Participants will be given a chance to work in their professional group (doctors, nurses, counsellors, pharmacists and expert patients/community healthcare workers) in separate venues to discuss their particular challenges related to the day’s theme. The aim of the workshop is for key points to be identified for feedback to teams in the second workshop. Topics such as ‘Increasing nutrition support and/or integrating nutrition services into PMTCT and paediatric services’ will be discussed.
Workshop 2, in ‘home’ treatment teams: This is designed to allow participants to voice the challenges identified by their professional group in Workshop 1 to their teammates, and then work together to recommend changes that could be made to overcome some of these obstacles.
Afternoon feedback panels: This session will provide an opportunity for representatives from professional groups and teams to share their workshop deliberations with the larger assembly, and for teams to showcase specific projects in the Speakers’ Corner.
Team grids: On the final afternoon of the forum, teams set quality improvement goals that can be completed within three, six and 12 months which are recorded on a team grid. Team PATA will collate these grids and in the year that follows (2014), will stay in touch and provide mentoring support to teams.
Master classes and Special Sessions: Participants can use master classes and special sessions to extend knowledge by learning additional technical information or practical skills beyond the input which is presented in morning plenary sessions.
We look forward to having the already selected teams at the PATA 2013 East African Regional Forum in Dar es Salaam.
4. Office News: PATA Welcomes New Staff
PATA’s Programmes Manager and Coordinator of the Expert Patient Programme, Fiona Mpungu is leaving PATA at the end of October. Team PATA takes this opportunity to thank Fiona for her valuable contribution and wishes her the very best as she spreads her wings and takes on new career opportunities.
During this period of transition and renewal, PATA has been very fortunate to secure the services of a new Programmes Manager, Papy Clement Nkubizi, who has already started working at PATA to ensure smooth and effective handover during Fiona’s last month in office. Papy has a Masters Degree in Development Studies and extensive HIV programme management experience, having recently joined us from Ubuntu Education Fund.
He is an accredited trainer and has specialist consultant-level skills in Monitoring and Evaluation. Papy speaks eight languages fluently (including French, Swahili, Chichewa, Lingala, Kirundi) and has lived and worked in several African countries. Papy can be reached on email at email@example.com.
(Please note that all emails and communication regarding the Expert Patient Programme, PATA advocacy and social networking or media should now please be sent to firstname.lastname@example.org).
5. Join the new HIV Point of Care Community of Practice
Team PATA is pleased to share a new ‘Community of Practice on HIV Point of Care Diagnostics’ that has been designed by UNICEF and Clinton Health Access Initiative (CHAI) to promote shared learning about new HIV points of care and diagnostic technologies. Through this platform you will be able to share information with regard to Points of Care diagnostic technologies for CD4, Early Infant Diagnosis (EID) and Viral Load (VL). It also houses a library where you can upload key documents and host e-discussions and webinars (web seminars).
Team PATA encourages you to join this HIV Point of Care Community of Practice. You can register at http://knowledge-gateway.org/HIV_POC
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